We are a nonprofit established 26 years ago. We provide support, education for people and their families with Chiari malformation, Syringomyelia and other related disorders. Our website is ASAP.org. We have a national meeting with neurosurgeons and patients form all over the country yearly. It is held this year on July23-26.It will be held  in the NJ, Philly area this year.Please visit our website or call our office 903 236-7079